Pain
Unfortunately, pain is a horrible stage that most people go through. At different times in your illness your pain levels may vary.
Please remember you should consult your G.P. or specialist with regard to medication as these tips come from sufferers and not trained doctors. What suits one person can upset another.
It can be hard to find medication that works or you may build up a tolerance and it stops being effective.
ME sufferers react differently to different drugs, some severely affected people are very sensitive. It is always advisable to start treatments on very low doses and build up. When coming off long- term medication always reduce the dosage over a period of weeks rather than days, to reduce symptom flare-ups.
Non-Drug Treatments
For headaches make sure your head and neck are well supported.
You will find different people find different drugs and treatments helpful; but the main advice is to try and stay relaxed. If you get too stressed and tense, you use up valuable energy, which makes it worse. Try to distract yourself.
Relaxation Breathing
Breathe in slowly through your nose and out slowly through your mouth or nose depending which feels best.
Visualisation is also a useful tool. You can imagine the pain as a colour inside you, say black or red and imagine breathing it out on the out breath and breathing in a colour representing peace and happiness on the in breath, say blue or white. Or just use the breathing out for pain and in for comfort, if the colour takes too much concentration.
Alternatively imagine the pain is a ball, balloon or large coloured cloud and visualise yourself throwing or releasing it into the sky, watching it drift further and further away.
Please remember you should consult your G.P. or specialist with regard to medication as these tips come from sufferers and not trained doctors. What suits one person can upset another.
Please remember you should consult your G.P. or specialist with regard to medication as these tips come from sufferers and not trained doctors. What suits one person can upset another.
It can be hard to find medication that works or you may build up a tolerance and it stops being effective.
ME sufferers react differently to different drugs, some severely affected people are very sensitive. It is always advisable to start treatments on very low doses and build up. When coming off long- term medication always reduce the dosage over a period of weeks rather than days, to reduce symptom flare-ups.
Non-Drug Treatments
- Heat can help with specific areas – a hot water bottle, a “wheaty pack” heated in the microwave, or possibly a bath. If you have specific muscle pains you can direct a shower head onto the area, spraying it with warm water, possible even alternating with cold water.
- Evening primrose oil.
- Tiger balm available from most chemists to rub on painful areas, this can sting though and definitely don't get it in your eyes! Wash your hands after applying.
- Tens unit. This is a machine that delivers small electrical pulses to an area of your body via electrode pads.
For headaches make sure your head and neck are well supported.
- Migra stick – a homeopathic substance in a vial, which you hold against your head.
- 4head stick – a stick of lotion which you rub on your forehead.
- There is a pressure point on the hand, which can relieve headaches. Choose the hand for the side of the body which is hurting. Make an ‘L shape’ with your thumb and forefinger. Squeeze the skin point where the two fingers meet, with your thumb and forefinger of the other hand. Hold for a minute and then gently release. Repeat for the other side, if he headache affects your whole head. This can be painful; but the benefits are worth it.
- Small gel strips used for relieving a child’s fever can be placed on the forehead because they don’t drip like a flannel.
- Steam inhalation for sinus problems. Or lymphatic drainage massage around the face and neck.
- Place one hand on your forehead, the other on your neck and breathe deeply.
- Check you aren't dehydrated as this can cause headaches
You will find different people find different drugs and treatments helpful; but the main advice is to try and stay relaxed. If you get too stressed and tense, you use up valuable energy, which makes it worse. Try to distract yourself.
Relaxation Breathing
Breathe in slowly through your nose and out slowly through your mouth or nose depending which feels best.
Visualisation is also a useful tool. You can imagine the pain as a colour inside you, say black or red and imagine breathing it out on the out breath and breathing in a colour representing peace and happiness on the in breath, say blue or white. Or just use the breathing out for pain and in for comfort, if the colour takes too much concentration.
Alternatively imagine the pain is a ball, balloon or large coloured cloud and visualise yourself throwing or releasing it into the sky, watching it drift further and further away.
Please remember you should consult your G.P. or specialist with regard to medication as these tips come from sufferers and not trained doctors. What suits one person can upset another.
Claire Wade. Studio 17659, PO Box 6945, London, W1A 6US
This site is written by someone who is severely affect with ME and is compiled as a result of personal experience and research of other people with ME and their families. It is intended for information and guidance only. It is not intended to replace medical advice. Readers are strongly urged to consult a professional medical practitioner for a proper diagnosis or assessment before trying any of the treatments or medications outlined. As with all medications, always consult your GP, specialist or pharmacist and tell them about other medications or herbal preparations you are already taking; always read the label and patient information leaflet.
The contributors to this website are not medically trained but all live with or have significant experience of ME. The tips may not be suitable for everyone. No responsibility for loss occasioned to any person acting or refraining from action as a result of any statement in this work can be accepted by the author.
No part of this work may be reproduced or transmitted in any form or by any means (photocopying, electronic, recording or otherwise), except for personal or non-commercial use without the permission of the author.
Claire Wade has asserted her right under the Copyright, Designs and Patents Act of 1988 to be identified as the author of this work.
The contributors to this website are not medically trained but all live with or have significant experience of ME. The tips may not be suitable for everyone. No responsibility for loss occasioned to any person acting or refraining from action as a result of any statement in this work can be accepted by the author.
No part of this work may be reproduced or transmitted in any form or by any means (photocopying, electronic, recording or otherwise), except for personal or non-commercial use without the permission of the author.
Claire Wade has asserted her right under the Copyright, Designs and Patents Act of 1988 to be identified as the author of this work.