Unfortunately pain is a horrible stage that most people go through. At different times in your illness your pain levels may vary. Don’t worry if you can’t find anything that really helps, it will slowly get better. Generally doctors agree that the pain is in the brain rather that in a specific muscle or joint, which is why normal painkillers don’t tend to work.
Some tablets that people have found useful are:
ME sufferers react differently to different drugs, some severely affected people are very sensitive. It is always advisable to start treatments on very low doses and build up. When coming off long- term medication always reduce the dosage over a period of weeks rather than days, to reduce symptom flare-ups.
For headaches make sure your head and neck are supported. You can realign your neck by placing one hand on your forehead, the other on your neck and breathe deeply.
You will find different people find different drugs and treatments helpful; but the main advice is to try and stay relaxed. If you get too stressed and tense, you use up valuable energy, which makes it worse. Try to distract yourself – many find relaxation breathing helps.
Breathe in slowly through your nose and out slowly through your mouth or nose depending which feels best.
Visualisation is also a useful tool. You can imagine the pain as a colour inside you, say black or red and imagine breathing it out on the out breath and breathing in a colour representing peace and happiness on the in breath, say blue or white. Or just use the breathing out for pain and in for comfort, if the colour takes too much concentration.
Alternatively imagine the pain is a ball, balloon or large coloured cloud and visualise yourself throwing or releasing it into the sky, watching it drift further and further away.
Please remember you should consult your G.P. or specialist with regard to medication as these tips come from sufferers and not trained doctors. What suits one person can upset another.
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