"I found your website several years ago when I first became ill and it's by far the best coping resource I've ever found; it covers absolutely every aspect of living with ME in a really sensitive and dignified way; from things to do to bring some fun into my days, to practical mobility issues. My husband and I still consult it on a regular basis and it's made a huge difference to my quality of life." Ziggy
Feedback about the original book Surviving Severe ME.
"Your book has been inspirational to us. We feel far less helpless as a result of reading it. Thank you so much. We shall quote passages to our doctor and specialist as necessary. You give us and our daughter hope. Well done! We hope you yourself will be encouraged to carry on the fight until a "cure" is found. What you have written is so helpful and we are so grateful."
"We got the severe M.E. guide and we are really pleased with it & it will be so very helpful & useful it will no doubt be going round the family for them to read, & the drawing of the different sitting & lying positions are really great & a godsend we have tried them since it came and they are so much more comfortable when you have to spend so much time in bed It has also given me some more ideas of what to do with my bedroom because I spend weeks & months in there we can now make it more interesting for me."
"Many thanks for this fantastic guide! A great reference to dip into, lots to think about & help improve our son's life. We will be showing it to the home tutor & specialist doctor who visits our home as it should help them to understand even better & help other ME sufferers that they also see."
Support this Site.
Surviving Severe ME is run on a voluntary basis. If you find the information helpful please support this site.