A Note to Those Who Have Recovered
Please remember those of us who are left behind, the ones who are still struggling everyday with pain, exhaustion and frustration. Those whose recovery is taking years despite how careful we are, how well we pace ourselves, or the treatments we try. We don't want recovery any less than you we just aren't as lucky.
We are pleased that you are doing better, and it gives us hope that one day, we will get better too; but hope will only get you so far, then we have to settle down to the endurance of our day-to-day existence.
There are people with M.E. who have been ill for over a decade and in that time have seen so many people come and go. Watched as their “friends†have recovered and moved on, leaving them behind along with the memories of their illness.
The feeling of abandonment hurts, especially when you've put time and energy into supporting that person, while they were ill. We don't expect you to contact us every day, or even every week; but the occasional card or text would be nice, and try to remember what we are still going through. Tell us how you are doing; but don't forget to ask how we are, what we are up to and how life is in general.
It may be hard to be reminded of what you've been through; but the person still suffering needs the support, now more than ever, and as they were there for you, please be there for them.
This isn't meant to be a guilt trip or to point the finger of blame, just a plea to remember the ones still on the long, slow road to recovery.
We are pleased that you are doing better, and it gives us hope that one day, we will get better too; but hope will only get you so far, then we have to settle down to the endurance of our day-to-day existence.
There are people with M.E. who have been ill for over a decade and in that time have seen so many people come and go. Watched as their “friends†have recovered and moved on, leaving them behind along with the memories of their illness.
The feeling of abandonment hurts, especially when you've put time and energy into supporting that person, while they were ill. We don't expect you to contact us every day, or even every week; but the occasional card or text would be nice, and try to remember what we are still going through. Tell us how you are doing; but don't forget to ask how we are, what we are up to and how life is in general.
It may be hard to be reminded of what you've been through; but the person still suffering needs the support, now more than ever, and as they were there for you, please be there for them.
This isn't meant to be a guilt trip or to point the finger of blame, just a plea to remember the ones still on the long, slow road to recovery.
Claire Wade. Studio 17659, PO Box 6945, London, W1A 6US
This site is written by someone who is severely affect with ME and is compiled as a result of personal experience and research of other people with ME and their families. It is intended for information and guidance only. It is not intended to replace medical advice. Readers are strongly urged to consult a professional medical practitioner for a proper diagnosis or assessment before trying any of the treatments or medications outlined. As with all medications, always consult your GP, specialist or pharmacist and tell them about other medications or herbal preparations you are already taking; always read the label and patient information leaflet.
The contributors to this website are not medically trained but all live with or have significant experience of ME. The tips may not be suitable for everyone. No responsibility for loss occasioned to any person acting or refraining from action as a result of any statement in this work can be accepted by the author.
No part of this work may be reproduced or transmitted in any form or by any means (photocopying, electronic, recording or otherwise), except for personal or non-commercial use without the permission of the author.
Claire Wade has asserted her right under the Copyright, Designs and Patents Act of 1988 to be identified as the author of this work.
The contributors to this website are not medically trained but all live with or have significant experience of ME. The tips may not be suitable for everyone. No responsibility for loss occasioned to any person acting or refraining from action as a result of any statement in this work can be accepted by the author.
No part of this work may be reproduced or transmitted in any form or by any means (photocopying, electronic, recording or otherwise), except for personal or non-commercial use without the permission of the author.
Claire Wade has asserted her right under the Copyright, Designs and Patents Act of 1988 to be identified as the author of this work.