Tube-feeding is not something to be scared about. Many severely affected people are tube-fed and although not a pleasant experience, it is something they get used to.
Although this pack can’t give you all the medical information on tube-feeding it can give you some tips on how to make tube-feeding easier.
Most people have a Nasal-Gastric (NG) tube, this is one that is put down the nose into the stomach. Some severely affected people even put their own tubes in.
If the NG tube becomes a problem, especially if you keep being sick, then you can have a Percutaneous Endoscopic Gastronomy (PEG) this is a tube that is placed directly into your stomach through an incision in your abdomen. This can be a good option if NG tubes aren’t possible; but great care has to be taken to avoid infections.
Inserting the Nasal-Gastric Tube.
Don’t use bulk forming products like “Fibrogel” as this will swell and block the tube.
You can be tube fed at home, this does mean a lot of work for the carer; but it depends what is the best option for you and your family.
Support this Site.
Surviving Severe ME is run on a voluntary basis. If you find the information helpful please support this site.